Planning for the "You" of Tomorrow: Advance Care Planning for Dementia

Who Are You When You Can No Longer Speak?

Dementia is now the leading cause of death in Australia. It is a statistic that terrifies many of us. The fear isn't just about dying; it's about the erosion of self. Who will I be? Will I still be treated with dignity?

We often think of Advance Care Planning (ACP) as a medical checklist: Do not resuscitate. No intubation.

But for a condition like dementia, where you might live for years without the capacity to make decisions, a medical checklist is not enough. You need a Values Directive or Advance Care Directive.

What is a Values Directive?

A Values Directive tells your future caregivers how to care for your spirit, not just your biology.

If you were unable to speak, what would bring you comfort? What would distress you?

I encourage my clients to get incredibly specific. A "Dementia Care Plan" might include instructions like:

• Sensory Needs: "I have always hated the cold. Please ensure I have extra blankets, even if it seems warm to you."

• Music & Joy: "Please play 70s folk music in the afternoons. It calms me."

• Touch: "I love having my hair brushed," OR "Please do not touch my face without asking; it startles me."

• Diet: "I prefer tea over coffee. I love the smell of lavender."

The Gift to Your Family

Writing this down now is an act of profound love for your family. It removes the guesswork. Instead of wondering, "Is Mum happy? Are we doing the right thing?" they can look at your words and know exactly how to comfort you.

It allows you to parent them, even when you can no longer speak to them.